A Wedding

Well, folks, John asked me to marry him. I finally get my “real” wedding for our 35th anniversary in October of 2019. It will either be on Saturday the 12th or Sunday the 13th depending on where I can find to have it. Here is a link to our wedding website (never knew there was such a thing). John and Mary’s wedding website

I am going to get a real wedding dress (I am so excited) so I have started looking on Davids Bridal and found a few I really like. John says he wants to wear tails but I haven’t found a place that rents them his size yet. I know, I know some are way out of my league but a girl can dream. 😀

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A little about me

I talk a lot about John and all his problems but what I haven’t really talked about much are me and all my fun problems. I have had high blood pressure and asthma for years (high BP since my early 20’s when I was skinny). I was diagnosed with fibromyalgia and spinal stenosis (yeah old people bones) about 15 years ago. I have had pneumonia about 5 times over the last few years and been in the hospital more than John has.

I have not had insurance since John had to quit work and don’t qualify for anything else because he was on disability and now Medicare and since I am his full-time caregiver I don’t work outside the house or have I earned any work credits in the last few years due to kids, school and taking care of him. In December I was in the hospital for a few days and had something called a Schatzki ring or Schatzki–Gary ring (a narrowing of the lower esophagus that can cause difficulty swallowing (dysphagia). The narrowing is caused by a ring of mucosal tissue (which lines the esophagus)”. In my case, I felt like I was choking all the time and could not even breath at times. Eating was painful for me and I felt like I was going to die. They went in and stretched it and that took care of the worst of it.

I had been referred to the swallowing center and went there on Monday to talk with the dr. In a nutshell what he told us was that even though I “thought” my GERD/REFLUX was cured with the meds I have been taking that are amazing what I didn’t know was that they were just neutralizing the acid and I still had it and it was still doing all kinds of damage. He told us there was only one thing that could fix my problem (because it is a structural issue where my esophagus meets my stomach doesn’t work anymore so everything I eat basically just creeps back up and when I eat instead of it pushing it through as normal it just kind of scoots it up and out the wrong way) and that was to have bariatric surgery and basically get rid of my stomach so it had to go down and not up. He flat out said that this will kill me sooner or later, it is probably responsible for pneumonia I get (aspiration or bacterial) for my sleep apnea, this chronic cough I have now that is not only annoying but painful and more.

I don’t have insurance but I really want to not die sooner rather than later lol SO if you see me selling donuts on the side of the road you know what it is for!  Do they still put out jars at convenience stores? I just want people to know that yes I am fat have been for years and as you know (if you know me personally) could care less about what others think about me so this is definitely NOT about losing weight but about  being able to look after John and not have to have him sit by my hospital bed while I make sure he takes his meds. It is about being able to walk to the mailbox without coughing up a lung or so it feels like.

I just wanted everyone to know what is going on and what I will be trying to get done.

 

Contest look like the only way we will be traveling this year so I am entering away.

Because of all the other problems we had at the end of last year and trying to get things fixed up this year travel will probably not be an option. Heck even going camping probably won’t happen because one we don’t have a car and two we don’t have a place to sleep anymore (John just can’t get up and down of one of those low inflatable beds anymore).

So, since we have so much on our plate I am entering every contest I can find (If you know of one let me know). This one we could use for our anniversary in October because they have a place in Gatlinburg. I have entered one for Valentine’s day, a few cruises, one to Alaska and I don’t know how many in Florida. We still have to look for prizes that are close unless travel is included because we have to rent a car.

We are excited to have Straight Street working on coming and fixing the kitchen floor and maybe even later come put in a walk-in shower for John. We still have the Go Fund Me to help with the cost of the kitchen and maybe the bathroom.

Rambles of a bad cold!

John M Worley and I really really need to lose some weight this year, the fatigue from his disease makes it super hard for him to be active but we ARE going to do it. I loved Weight Watchers back when I did it years ago but it has gotten SO expensive. I found the free point list so I guess we will try to do the “I will figure it out the best I can” plan lol. I sure wish we had something like Planet Fitness (the one that is $10 a month) close so that we could use the recumbent bikes there since John can’t do a lot of walking and needs to build up his stamina and try to counteract the muscle wasting that comes from the cirrhosis. We haven’t camped or fished for almost 2 years because it is so hard on him or we can’t find a good place with easy access and that is shady. This is going to be the year of “doing more” since we “did nothing” last year. The first of the year we will spend getting the house back in order and getting the damage from the leaking water heater, dishwasher and sink fixed. We also want to get outside in order and we have a few things that need to be done there. Boy, do I need a magic wand, a winning lottery ticket or an army of minions? Oh yeah and a car lol it’s hard to fish or camp or even work on plumbing with no way to go, sometimes I think we need to move to the city so we can just hop a bus. I loved Chattanooga and Nashville anyone want to give us a place to live right downtown at either LOL 

2018 A New Year With New Challenges. We Really Hope Things are Looking Up!

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Looking up to 2018!

If it weren’t for bad luck we would have no luck at all!

As you can tell from some of my earlier posts we have had a run of bad luck. WELL, let me tell you about it! Over the last few months we have: lost the car to a groundhog, the stove went out, refrigerator went out, the microwave died, vacuum quit, found out the water heater was leaking and when I put in the new dishwasher my aunt gave us for Christmas I found out that not only had the water heater been leaking and rotting the floor but the drain hose on the dishwasher had a hole in it and the plumbing under the sink where it hooked was leaking.

My wonderful aunt gave us the dishwasher for Christmas, gave us her refrigerator when she got a new one (earlier than she had planned) and ordered us the water heater. We lucked up and our daughter had a friend that put in the water heater for us and told us the floor was rotten. I installed the dishwasher and fixed the plumbing under the sink after being without water for two days because it kept leaking till I redid it about 3 times. Did I mention I am not a great plumber! I sprayed the mold caused by the leaking dishwasher and we made it through everyone coming to our house Christmas Eve and the floor didn’t fall in.

NOW comes the hard part, we have to take out the water heater, stove, dishwasher, sink and three cabinets and all of the flooring (because it is laminate that we got on clearance and made it work by cutting off most of the locking stuff and stapling it down. From what I understand we will then have to take up the flooring (plywood and probably some kind of onebys under it to get to the floor joist and the sill plates to see what can be saved and what will have to be replaced. thas dropped about a half an inch since I marked it on the wall (in the pictures) and it was about a half inch when I marked it the first time. I so don’t want to have to get my new hot water heater or stove out of the basement we don’t have.

I have no idea how we are going to get this done much less pay for it but we will figure out something or luck out and someone who knows more than we do and is much stronger will come around. I will have to replumb under the sink when we get it done so that is just one more thing I dread and we will have to do without a kitchen with 7 people in the house for no telling how long if I have to do most of the work because I am slow…………. and John is good at supervising and that is about it (well and telling me what I did wrong lol).

I had planned on this year doing the bedroom floor (putting down plywood over the old plank floors) and trying to get the shower replaced with a walk in one since John is having more and more trouble getting over the side of the tub into the shower. That and adding grab bars in the bathroom and living room and getting someone to clean the yard up and taking down the old shed that is coming down. The best-laid plans of mice and men ya know.

I still would love for us to get to Savannah and to Gatlinburg/Pigeon Forge for our anniversary but I don’t see more than a few days in the tent this year with all this other stuff. We bought a microwave and vacuum, tons of plumbing stuff and John and I both needed some winter clothes (he has gone up to a 4XT shirt and up a pants size because he likes comfortable) and let’s not forget Christmas.

We have had some really great people help us over the last 4 years since John got sick and had to quit work so I am not sure if I need to start a gofundme (I did and the link is at the bottom) to help pay for repairs or hope my karma brings us some helpers or what. I would ask everyone keep us in their good thoughts, light a candle, pray, meditate or whatever you believe in to help bring us good karma so we can get this done before something happens that will make it a ton worse. And please universe we have had about all we can handle for now please give us a break. And I almost forgot!!!! during the hurricane we had the HVAC unit go out and had to replace the fan in it again (it had to be done right after we got it installed). I think that is all or the biggies anyway we won’t talk about sickness, hospital visits, new doctors and man colds.

GoFundMe

Our 32nd Anniversary Trip

Now that I have my computer and not trying to type on the tablet (a feat I have not mastered) I want to thank everyone who helped us make our anniversary trip a weekend to remember. The Fitzpatrick Hotel (the most unique hotel we have ever stayed in (in a good way) and something that if you get a chance you should go), The Jockey Club and Penny and her family for some of the best food we had eaten in a long time (and a good price and not skimpy servings), The city of Washington Ga for letting us celebrate with them and watch my favorite movie Hocus Picus on the square with a ton of cute kids in costume, my aunt for letting us borrow her car and my cousin you know what you did. It was so much fun and I would LOVE to go back closer to Christmas and stay again and do the tour of homes and see how the beautiful old lady is dressed for the holidays. As for ghost we didn’t see any BUT while trying to do an EVP session in the 2nd floor ballroom (our first try) I was setting up flashlights on the mantle next to the doors to the kitchen and I thought John M Worley had snuck up behind me and whispered in my ear but he was sitting in the middle of the room in a chair. Scared the heck out of me but I am not ashamed to admit something tried to talk to me. Thanks to The Ghost Brothers and Destination Americafor introducing us to the Fitzpatrick and all her beauty and mystery.#Bucketlist #anniversary