I talk a lot about John and all his problems but what I haven’t really talked about much are me and all my fun problems. I have had high blood pressure and asthma for years (high BP since my early 20’s when I was skinny). I was diagnosed with fibromyalgia and spinal stenosis (yeah old people bones) about 15 years ago. I have had pneumonia about 5 times over the last few years and been in the hospital more than John has.
I have not had insurance since John had to quit work and don’t qualify for anything else because he was on disability and now Medicare and since I am his full-time caregiver I don’t work outside the house or have I earned any work credits in the last few years due to kids, school and taking care of him. In December I was in the hospital for a few days and had something called a Schatzki ring or Schatzki–Gary ring (a narrowing of the lower esophagus that can cause difficulty swallowing (dysphagia). The narrowing is caused by a ring of mucosal tissue (which lines the esophagus)”. In my case, I felt like I was choking all the time and could not even breath at times. Eating was painful for me and I felt like I was going to die. They went in and stretched it and that took care of the worst of it.
I had been referred to the swallowing center and went there on Monday to talk with the dr. In a nutshell what he told us was that even though I “thought” my GERD/REFLUX was cured with the meds I have been taking that are amazing what I didn’t know was that they were just neutralizing the acid and I still had it and it was still doing all kinds of damage. He told us there was only one thing that could fix my problem (because it is a structural issue where my esophagus meets my stomach doesn’t work anymore so everything I eat basically just creeps back up and when I eat instead of it pushing it through as normal it just kind of scoots it up and out the wrong way) and that was to have bariatric surgery and basically get rid of my stomach so it had to go down and not up. He flat out said that this will kill me sooner or later, it is probably responsible for pneumonia I get (aspiration or bacterial) for my sleep apnea, this chronic cough I have now that is not only annoying but painful and more.
I don’t have insurance but I really want to not die sooner rather than later lol SO if you see me selling donuts on the side of the road you know what it is for! Do they still put out jars at convenience stores? I just want people to know that yes I am fat have been for years and as you know (if you know me personally) could care less about what others think about me so this is definitely NOT about losing weight but about being able to look after John and not have to have him sit by my hospital bed while I make sure he takes his meds. It is about being able to walk to the mailbox without coughing up a lung or so it feels like.
I just wanted everyone to know what is going on and what I will be trying to get done.